Disability, Race, and Health Beyond the Carceral State

Embodied Injustice: Race, Disability, and Health. By Mary Crossley. Cambridge; New York: Cambridge University Press. 2022. Pp. xi, 246. $34.99.

Introduction

In Embodied Injustice: Race, Disability, and Health (“Embodied Injustice”), Professor Mary Crossley1Professor of Law, University of Pittsburgh School of Law.
argues that “attending to race-and-disability intersections (at both individual and social movement levels) is critically important to achieving progress toward health equity” (p. 8). Ableism and racism permeate core socio-legal institutions in the United States, leading people with disabilities (PWD) and Black people to experience worse health outcomes than other groups (p. 12). These groups continue to experience unethical and sometimes even abusive treatment in hospitals and other sites of health care delivery.2See infra Part II.
In other areas of law and policy, such as housing, education, and policing, PWD and Black people also experience conditions that threaten health and wellbeing.3See infra Part III.
Embodied Injustice calls for intersectional grassroots efforts to address these harms.

Our Review focuses on the role that criminal law enforcement plays in exacerbating health inequities experienced by PWD and Black people. Criminal law enforcement acts directly on the bodies of PWD and Black people. It also interacts with and reinforces other mechanisms—health care, education, and housing—that Crossley identifies as determinants of such inequities (pp. 12–13). We argue that addressing these harms requires that we not only extricate criminal authority from these areas of law and policy but that we also rethink the operation of criminal law enforcement itself through the prism of grassroots intersectionality. In doing so, we offer a concrete example of Embodied Injustice’s vision that supports Crossley’s analysis.

Part I sets up the disability-race-health theoretical backdrop that undergirds the book and our analysis. Part II examines three case studies that Embodied Injustice uses to advance its intersectional health justice framework: motherhood, Medicaid, and mistrust in medicine. Within each case study, we emphasize how criminal law enforcement exacerbates inequities in health. Part III discusses areas beyond medicine that Crossley identifies as vectors of inequity, including housing, education, and the carceral system; notably, PWD and Black people also interact with the carceral system in the education and housing contexts. Part IV draws on some still-preliminary qualitative research on alternative emergency response programs (“Alternative Responses”), many of which have emerged from intersectional grassroots efforts of PWD and Black people to address health inequities created by criminal law enforcement. Even a brief examination of these programs allows us to reflect upon health and safety in ways consistent with Embodied Injustice’s vision for intersectional health justice.

I. Constructing and Reconstructing Theories of Disability, Race, and Health

Embodied Injustice’s thesis centers on how perceived biological inferiority is used as a rationale for exclusion and oppression. Historically, disability has been understood in biological terms, “as an innate, biological, or psychological trait to be cured or rehabilitated.”4Jamelia N. Morgan, Policing Under Disability Law, 73 Stan. L. Rev. 1401, 1421 (2021).
Race, too, has been understood in biological terms, as “reflect[ing] inherent differences that explain groups’ disparate social outcomes and justify racial subordination.”5 Osagie K. Obasogie, Blinded by Sight: Seeing Race Through the Eyes of the Blind 20 (2014).
These biological understandings were reflected, for example, in eugenic policies that reached their apogee in decisions like Buck v. Bell,6Buck v. Bell, 274 U.S. 200 (1927).
where Justice Oliver Wendell Holmes justified involuntary sterilization: “It is better for all the world if, instead of waiting to execute degenerate offspring for crime or to let them starve for their imbecility, society can prevent those who are manifestly unfit from continuing their kind.”7Id. at 207.
Such policies targeted both PWD and Black people. Buck has not been overruled, and biological misunderstandings of disability and race remain robust to this day.8See Melissa Murray, Race-ing Roe: Reproductive Justice, Racial Justice, and the Battle for Roe v. Wade, 134 Harv. L. Rev. 2025, 2059 (2021).

Thankfully, biologically deterministic theories are slowly yet promisingly being scrutinized and replaced by frameworks that ascribe health to social, political, and cultural determinants (pp. 46–49, 52–55). The social model of disability takes a largely exogenous approach by ascribing “disadvantages experienced by disabled people as flowing from social systems and structures” (p. 52) rather than from biologically inherent characteristics. Additionally, significant historical events—including the United Nations Educational, Scientific and Cultural Organization’s Statement on Race and the Human Genome Project—have helped create “a path for understanding race as a political and social fact: race as socially constructed, not biologically destined” (p. 47).

Thorny questions at the boundary of disability-race theories have arisen over time. For example, a debate rages among scientists and bioethicists about how to define racial identity in bioscientific research.9See generally Darshali A. Vyas, Leo G. Eisenstein & David S. Jones, Hidden in Plain Sight—Reconsidering the Use of Race Correction in Clinical Algorithms, 383 New Eng. J. Med. 874 (2020).
Crossley suggests that “[a] person’s ancestry . . . may predict their genetic makeup (and its health implications), but their racial identity does not” (p. 47). Others have argued that even relying on a person’s genetic ancestry may be problematic, as it may “be serving as a proxy for differences in environmental effects, including the effects of discrimination.”10Anna C. F. Lewis et al., Getting Genetic Ancestry Right for Science and Society, 376 Sci. 250, 252 (2022).
Similarly, in the disability context, two of us have endorsed using neuroscientific evidence of behavioral impairments to prevent the imposition of punitive practices like the death penalty and solitary confinement.11See generally Benjamin A. Barsky & Michael Ashley Stein, The United Nations Convention on the Rights of Persons with Disabilities, Neuroscience, and Criminal Legal Capacity, 10 J.L. & Biosciences 1 (2023).
Although members of the international disability rights community have attacked reliance on bioscientific evidence in the criminal context as instantiating biomedical notions of disability,12Id. at 7 (highlighting that a highly influential wing of the international disability rights community rejects all use of bioscientific evidence to characterize disability in the criminal context).
the use of such evidence is directed at preventing harmful and oppressive social practices.

Crossley analyzes biological versus social constructions of disability and race throughout her book, showing how biological constructions essentialize and oppress PWD and Black people in health care contexts. She also demonstrates how oppression is better understood through analysis of social conditions. We use Crossley’s analysis to show how the criminal legal system has reinforced biological frameworks and contributed to the social oppression that explains and worsens health inequities.

II. Three Facets of Intersectional Health Justice

Embodied Injustice uses three case studies to illustrate how medicine and health care institutions can harm PWD and Black people: motherhood, Medicaid, and mistrust in medicine. Each offers a rich account of how laws, policies, and practices have been determinants of morbidity and mortality among these populations. American health care has also internalized carceral logics and techniques, enhancing the inequities Embodied Injustice describes.

A. Motherhood

The chapter on motherhood makes the case that “[t]he practice and politics of motherhood presents an intersectional roller derby of sorts, where multiple aspects of a woman’s identity collide repeatedly” (p. 103). Historically and to this day, women with disabilities and Black women have suffered discrimination, stigmatization, and other forms of subjugation.13See pp. 103–04.
These problems will be exacerbated for both groups by the Supreme Court’s decision in Dobbs v. Jackson Women’s Health Organization,14Dobbs v. Jackson Women’s Health Org., 142 S. Ct. 2228 (2022).
which overturned Roe v. Wade15Roe v. Wade, 410 U.S. 113 (1973).
and ended the constitutional right to terminate pregnancy.16See A Post-Roe America: The Legal Consequences of the Dobbs Decision: Hearing before the S. Comm. on the Judiciary, 117th Cong. 2 (2022) (statement of Khiara M. Bridges, Professor of Law, UC Berkeley School of Law) (“[T]he harms of the Court’s decision will fall hardest on people who are already vulnerable—Black, Indigenous, and other people of color, people with disabilities, young people, LGBTQI+ people, and others whose access to abortion is additionally frustrated by structural inequities in access to health care.”); see also Robyn M. Powell, Forced to Bear, Denied to Rear: The Cruelty of Dobbs for Disabled People, 112 Geo. L.J. (forthcoming 2024).
Compounding the impact of Dobbs, the United States lags behind peer countries on key reproductive health metrics, including maternal and child mortality.17Munira Z. Gunja, Evan D. Gumas & Reginald D. Williams II, The U.S. Maternal Mortality Crisis Continues to Worsen: An International Comparison, Commonwealth Fund (Dec. 1, 2022), https://www.commonwealthfund.org/blog/2022/us-maternal-mortality-crisis-continues-worsen-international-comparison [perma.cc/4QFS-TJHS]; Munira Z. Gunja, Evan D. Gumas & Reginald D. Williams II, U.S. Healthcare from a Global Perspective, 2022: Accelerating Spending, Worsening Outcomes, Commonwealth Fund (Jan. 31, 2023), https://www.commonwealthfund.org/publications/issue-briefs/2023/jan/us-health-care-global-perspective-2022 [perma.cc/R452-LMTF].

The eugenic legacy of disability being an inherent deficit—as expressed in Buck—underlies practices in these areas. Thirty-one states and the District of Columbia allow the involuntary sterilization of PWD.18See Nat’l Women’s L. Ctr., Forced Sterilization of Disabled People in the United States 5 (2021), https://nwlc.org/wp-content/uploads/2022/01/%C6%92.NWLC_SterilizationReport_2021.pdf [perma.cc/PR37-WK2A].
Although these laws appear to afford due process, “judges may sympathize with family members, without seriously considering less invasive alternatives and critically assessing sterilization’s impact on the disabled person” (p. 109). Black women likewise have continued to be subject to eugenical practices.19See generally Dorothy Roberts, Killing the Black Body: Race, Reproduction, and the Meaning of Liberty (2d ed. 2017).
For example, Dorothy Roberts observes that well after the Second World War, mothers on Medicaid in South Carolina were forced to agree to postpartum sterilization if they wanted the only obstetrician in their area who accepted Medicaid to deliver their baby.20Id. at 92.
Research also shows that Black women continue to face a higher likelihood of sterilization than White women,21Karina M. Shreffler, Julia McQuillan, Arthur L. Greil & David R. Johnson, Surgical Sterilization, Regret, and Race: Contemporary Patterns, 50 Soc. Sci. Rsch. 31 (2015).
which, “[g]iven the history of abusive sterilization practices, . . . merits further scrutiny” (p. 111). As Melissa Murray argues that these practices are part of a much larger program to control the bodies—and derivatively, the threatening and non-normative biology—of PWD and Black people.22See Murray, supra note 8, at 2059–62.
Criminal law exacerbates this program of reproductive control. Since Dobbs, more than a dozen states have criminalized abortion delivery services.23As of January 2024, fourteen states have banned most forms of abortion. See Tracking Abortion Bans Across the Country, N.Y. Times (Jan. 8, 2024), https://www.nytimes.com/interactive/2022/us/abortion-laws-roe-v-wade.html [perma.cc/KU4Z-YH94].

Beyond the context of abortion, criminal law enforcement reinforces the subjugation of Black mothers and mothers with disabilities well after childbirth.24Khiara Bridges makes this point explicit: “[P]regnancy combined with the woman’s at­tempted receipt of state aid not only [brings a woman within the jurisdiction of the state], but becomes an opportunity for the state to create a legal subject whose private life is exposed to super­vision, surveillance, and regulation.” Khiara M. Bridges, Reproducing Race: An Ethnography of Pregnancy as a Site of Racialization 72 (2011).
Crossley describes how an entire legal infrastructure—most notably via the child welfare system—has worked to “disrupt[] maternal bonds” and separate Black mothers from their children, “produc[ing] enduring effects on both parent and child” (p. 125). As Roberts explains, our child welfare system “is deeply entangled with cops, criminal courts, and prisons, forming an integrated arm of the US carceral regime.”25 Dorothy Roberts, Torn Apart: How the Child Welfare System Destroys Black Families—and How Abolition Can Build a Safer World 27 (2022).
It relies on groundless and racist assumptions of Black family dysfunction to legitimize its surveillance and enforcement tactics.26Id. (“Family policing targets Black families in particular and relies on racist beliefs about Black family dysfunction to justify its terror.”); see also Craig Konnoth, Medicalizing Minorities 10 (unpublished manuscript) (on file with authors) (discussing how psychiatric beliefs regarding family dysfunction have affected child welfare practices).

Behavioral health disabilities are similarly used as evidence of parental unfitness within the carceral child welfare system.27 Roberts, supra note 25, at 179.
Evidence shows that forty-two states and the District of Columbia legalize the policing of parenthood among mothers with disabilities and permit the termination of parental rights because of disability status.28Robyn M. Powell, Legal Ableism: A Systematic Review of State Termination of Parental Rights Laws, 101 Wash. U. L. Rev. 423, 455 (2023).
That number has remained stable over time, highlighting the entrenchment of stigmatizing and ableist laws that too often make parenthood among PWD impossible.29Id. at 473 (“[T]he number of state statutes that include parental disability as grounds for termination of parental rights has largely remained unchanged for over a decade.”).

B. Medicaid

As Embodied Injustice explains, Medicaid and its expansion have been of “distinctive importance” for PWD and Black people (p. 136). It has enhanced health service utilization, decreased out-of-pocket expenditures among PWD,30See pp. 141–42
and helped address the coverage gap that has disproportionately affected Black people (p. 139). Inversely, efforts that include challenges to Medicaid expansion31Nat’l Fed’n of Indep. Bus. v. Sebelius, 567 U.S. 519 (2012).
have impacted these groups. States avoiding Medicaid expansion are those “whose uninsured residents living in or near poverty . . . are disproportionately Black and Brown” (p. 136). These states also invest the least in home and community-based services, including case management and personal attendant services, that ensure PWD can live in community-based settings rather than in segregated congregate institutions.32See Molly O’Malley Watts, MaryBeth Musumeci & Priya Chidambaram, State Variation in Medicaid LTSS Policy Choices and Implications for Upcoming Policy Debates, KFF (Feb. 26, 2021), https://www.kff.org/report-section/state-variation-in-medicaid-ltss-policy-choices-and-implications-for-upcoming-policy-debates-issue-brief/ [perma.cc/VYT7-2AV6].

Medicaid’s reach, and its disproportionate benefits for PWD and Black people, are also limited by the criminal legal system. The so-called Medicaid Inmate Exclusion Policy (MIEP), a provision buried in the Social Security Amendments of 1965, prohibits the use of federal funds for the financing of health services in jails, prisons, and other detention facilities.3342 U.S.C. § 1396d(a)(xvii)(31)(A).
Resultantly, underfunded and often ill-monitored local and state governments are entrusted with carceral health care financing and administration.34See Aaron Littman, Free-World Law Behind Bars, 131 Yale L.J. 1385, 1406 (2022) (arguing that the MIEP disincentivizes jails and prisons from providing high-quality health care).
This arrangement puts incarcerated people with health vulnerabilities—disproportionately those who are PWD or Black people—at risk of neglect or deprivation. As of this writing, California, Montana, and Washington are the only states that have succeeded in bypassing the MIEP via § 1115 waivers.35States can seek § 1115 waivers to deviate from various standardized requirements of the Medicaid program—in this case, those of the MIEP. See Sweta Haldar & Madeline Guth, Section 1115 Waiver Watch: How California Will Expand Medicaid Pre-Release Services for Incarcerated Populations, KFF (Feb. 7, 2023), https://www.kff.org/policy-watch/section-1115-waiver-watch-how-california-will-expand-medicaid-pre-release-services-for-incarcerated-populations [perma.cc/W9SB-4MT3]; Medicaid Waiver Tracker: Approved and Pending Section 1115 Waivers by State, KFF (Dec. 21, 2023), https://www.kff.org/medicaid/issue-brief/medicaid-waiver-tracker-approved-and-pending-section-1115-waivers-by-state [perma.cc/4QAU-7YUF].
All other similar waiver requests are still pending approval by the federal government.36See Haldar & Guth, supra note 35; KFF, supra note 35.
Efforts to repeal the MIEP have also failed, despite the momentum to do so that occurred during the COVID-19 pandemic.37Blaire Bryant, Bipartisan Legislation Introduced in House and Senate to Address Medicaid Inmate Exclusion Policy, Nat’l Ass’n Cntys. (May 9, 2023), https://www.naco.org/blog/bipartisan-legislation-introduced-house-and-senate-address-medicaid-inmate-exclusion-policy [perma.cc/7UAF-USLC].

Evidence also suggests that access to Medicaid can burden PWD and Black people with histories of incarceration. For example, one study found that Medicaid-enrolled people seeking mental health services after release were at higher risk of reincarceration because of “violations of the technical conditions of probation or parole,” which can include complying with treatment plans and passing alcohol and drug urinalysis screenings.38Marisa Elena Domino et al., Do Timely Mental Health Services Reduce Re‐Incarceration Among Prison Releasees with Severe Mental Illness?, 54 Health Servs. Rsch. 592, 593 (2019).
Additionally, policies that require Medicaid recipients to show proof of employment, otherwise known as “work requirements,” also intersect with criminal law enforcement to exclude recently incarcerated PWD and Black people. Evidence shows that a history of incarceration, which disproportionately affects these populations, is linked with employment instability after release.39See, e.g., Bruce Western, The Impact of Incarceration on Wage Mobility and Inequality, 67 Am. Socio. Rev. 526 (2002); David J. Harding, Shawn D. Bushway, Jeffrey D. Morenoff & Anh P. Nguyen, Imprisonment and Labor Market Outcomes: Evidence from a Natural Experiment, 124 Am. J. Socio. 49 (2018). According to a survey conducted by the Prison Policy Initiative, twenty-seven percent of recently incarcerated individuals are unemployed, which is “higher than the total U.S. unemployment rate during any historical period, including the Great Depression.” Lucius Couloute & Daniel Kopf, Out of Prison & Out of Work: Unemployment Among Formerly Incarcerated People, Prison Pol’y Initiative (July 2018), https://www.prisonpolicy.org/reports/outofwork.html [perma.cc/8FTP-Z6MC].
Work requirements risk increasing uninsurance and worsening inequities given the labor-related difficulties that PWD and Black people experience upon release.

C. Mistrust

Powerful actors in medicine have exploited “Black bodies to further White goals” (p. 71). Examples range from nineteenth-century experimental surgeries on enslaved people (p. 72) to twentieth-century debacles like the Tuskegee Syphilis Study and the Kennedy Krieger Institute study (pp. 73–76). In the case of PWD, Saul Krugman’s research at the infamous and now-closed Willowbrook State School, where he distributed hepatitis-infected food to children with intellectual disabilities to study the virus and develop a vaccine, followed in these footsteps.40Pp. 83–86; Benjamin Weiser, Beatings, Burns and Betrayal: The Willowbrook Scandal’s Legacy, N.Y. Times, (Feb. 21, 2020) https://www.nytimes.com/2020/02/21/nyregion/willowbrook-state-school-staten-island.html [perma.cc/A4F6-5WK8].
Other examples abound. For example, Harriet Washington recounts experiments conducted by University of Pennsylvania researchers at the Holmesburg Prison in Philadelphia, Pennsylvania.41 Harriet A. Washington, Medical Apartheid: The Dark History of Medical Experimentation on Black Americans from Colonial Times to the Present 248–54 (2006).
Those inside, most of whom were Black and many of whom were PWD, became guinea pigs for tests involving harmful and sometimes lethal substances, including pharmaceuticals, radioactive isotopes, and chemical warfare agents.42Id. at 248–50; Jay Akbar, Haunted Ruins of the Tortured: The Ghostly Remains of U.S. Prison Where Disabled Citizens and Inmates Were Experimented on by the Government, Daily Mail (Apr. 16, 2015, 6:59 PM), https://www.dailymail.co.uk/news/article-3038202/Haunted-ruins-tortured-ghostly-remains-U-S-prison-disabled-citizens-inmates-experimented-government.html [perma.cc/XS7K-Q6EF]. Indeed, mistreatment of incarcerated people in bioscientific research has been well-documented. Dina Fine Maron, Should Prisoners Be Used in Medical Experiments?, Sci. Am. (July 2, 2014), https://www.scientificamerican.com/article/should-prisoners-be-used-in-medical-experiments [perma.cc/N5PS-ZSG3] (“Until the early 1970s most pharmaceutical research was conducted on prisoners—everything from studying chemical warfare agents to testing dandruff treatments.”).

Crossley’s examples are historically situated, but the mistrust Embodied Injustice describes goes deeper because of the intimate relationship that exists between clinical and law enforcement actors (pp. 123–24). Police presence in hospitals in general, and emergency rooms in particular, compromises patient privacy and confidentiality, especially among PWD and Black people.43Ji Seon Song, Policing the Emergency Room, 134 Harv. L. Rev. 2646, 2654–71 (2021); Sunita Patel, Embedded Healthcare Policing, 69 UCLA L. Rev. 808, 835–65 (2022); see also Benjamin A. Barsky, Law Enforcement Interventionism as Determinant of Decision-Making Among Resuscitated Opioid Users, Am. J. Bioeth., May 2024, at 40, 41–42.
It can also lead clinicians to feel obligated to share information with police, including test results, diagnoses, and treatment details, even when clinicians have the right to refuse disclosure.44Teneille R. Brown, When Doctors Become Cops 21 (Univ. of Utah Coll. of L., Research Paper No. 566, 2023), https://papers.ssrn.com/sol3/papers.cfm?abstract_id=4346154 [perma.cc/5BLC-45YY] (“Qualitative research has documented how physicians and nurses may divulge test results, patient treatments, and patient location to cops because they protected, feel pressured or ‘cornered’ by armed officers.” (citations omitted) (quoting Megan Y. Harada, Armando Lara-Millán & Lauren E. Chalwell, Policed Patients: How the Presence of Law Enforcement in the Emergency Department Impacts Medical Care, 78 Annals Emergency Med. 738, 743 (2021))).
Even when the police intrude on private and confidential patient affairs, holding them to account is too often impossible because of permissive and police-friendly Fourth and Fifth Amendment doctrine.45Song, supra note 43, at 2664.

Police presence affects the patient-physician relationship for PWDs and Black people far beyond emergency rooms. Some states require clinicians to call the police if patients behave in specific ways, including when pregnant people are found to be addicted to opioids.46Stephen W. Patrick & Davida M. Schiff, A Public Health Response to Opioid Use in Pregnancy, Pediatrics, Mar. 2017, at 1, 3.
These laws can deter people from seeking health care when they need it the most.47Id. at 3; see also Cara Angelotta, Carol J. Weiss, John W. Angelotta & Richard A. Friedman, A Moral or Medical Problem? The Relationship between Legal Penalties and Treatment Practices for Opioid Use Disorders in Pregnant Women, 26 Women’s Health Issues 595, 600 (2016) (finding that “prenatal child abuse laws may impede access to [medication-assisted treatment] for pregnant women”).
Criminal law enforcement also invades many aspects of medicine apart from reproductive health care.48See supra Section II.A.
These domains include behavioral health care, through the Drug Enforcement Administration’s monitoring and surveillance of controlled substance prescribing;49For a detailed treatment of this problem, see generally Jennifer D. Oliva, Dosing Discrimination: Regulating PDMP Risk Scores, 110 Calif. L. Rev. 47 (2022).
infectious disease medicine, through the criminalization of sexually transmitted diseases;50See, e.g., Courtney K. Cross, Sex, Crime, and Serostatus, 78 Wash. & Lee L. Rev. 71 (2021).
and pediatrics, through prohibitions on the provision of gender-affirming treatment.51See, e.g., Benjamin C. Park, Rishub K. Das & Brian C. Drolet, Increasing Criminalization of Gender-Affirming Care for Transgender Youths—A Politically Motivated Crisis, 175 JAMA Pediatrics 1205 (2021).
As Teneille Brown writes: “Everywhere you look, it seems, cops . . . blur the provision of health care with the prosecution of crime.”52Brown, supra note 44, at 5.

III. Intermediary Determinants of Health

Embodied Injustice’s case studies show how the medical system, in tandem with criminal law enforcement mechanisms, has led to unnecessary and preventable harm among PWD and Black people. The rest of the book explicates how other “[i]ntermediary determinants” of health (p. 153)—including the criminal legal system, housing, and education—have exacerbated health inequities among these groups.53Crossley was quoting a 2010 World Health Organization study using this phrase. World Health Org., A Conceptual Framework for Action on the Social Determinants of Health 6 (2010), https://iris.who.int/bitstream/handle/10665/44489/9789241500852_eng.pdf?sequence=1[perma.cc/G92D-9JBY].
We also emphasize that housing and educational systems are enmeshed with the criminal legal system in ways that exacerbate health-related harm.

A. Criminal Legal System

Although we have analyzed the cross-cutting role that criminal law enforcement plays in exacerbating health inequity, Crossley herself considers the criminal legal system’s impact on health. The book frames this discussion around the rise of “law and order” rhetoric that gained traction during the latter part of the twentieth century and coincided with a shift from investments in social and welfare programs during the Great Society era (p. 194). This phenomenon resulted in an increased and generalized reliance on police, jails, and prisons to respond to problems as diverse as mental health crises, controlled substance addiction, and school disciplinary matters.54For a richly documented historical account of this phenomenon, see Elizabeth Hinton, From the War on Poverty to the War on Crime: The Making of Mass Incarceration in America (2016).

Embodied Injustice provides a helpful intersectional analysis: “[A]lthough mass incarceration is most often described as locking up Black and Brown bodies, critical disability scholars argue that the intersection of race, class, and disability better defines the bodies subjected to mass incarceration” (p. 171). As has been extensively documented, PWD and Black people experience higher rates of police violence than other groups (p. 170 n.92). They are overrepresented in jails, prisons, and other detention facilities (pp. 170–72). Once confined within these institutions, they, more than any other population, are subjected to punitive practices like solitary confinement.55See generally Hannah Pullen-Blasnik, Jessica T. Simes & Bruce Western, The Population Prevalence of Solitary Confinement, 7 Sci. Advances Nov. 26, 2021, at 1, 1, https://www.science.org/doi/epdf/10.1126/sciadv.abj1928 [perma.cc/Q3NQ-RY5N]; ACLU, Caged In: Solitary Confinement’s Devastating Harm on Prisoners with Physical Disabilities 5, 14 (2017), https://www.aclu.org/sites/default/files/field_document/010916-aclu-solitarydisabilityreport-single.pdf [perma.cc/5HT9-BFMB]; Benjamin A. Barsky, Ending Restrictive Housing in Prisons for People with Mental Disorders, 73 Psychiatric Servs. 463, 463–66 (2022).

Injustice does not stop there. Upon reentry, PWD and Black people disproportionately experience barriers that hinder their ability to reintegrate into their communities and avoid repeated encounters with the criminal legal system.56See generally, e.g., Reuben Jonathan Miller, Halfway Home: Race, Punishment, and the Afterlife of Mass Incarceration (2021).
The MIEP plays a crucial role in this context. Scholars persuasively hypothesize that this provision has contributed to the high rates of drug overdose that occur after people are released into the community.57See, e.g., Utsha G. Khatri & Tyler N.A. Winkelman, Strengthening the Medicaid Reentry Act—Supporting the Health of People Who Are Incarcerated, 386 New Eng. J. Med. 1488, 1488 (2022).
The COVID-19 pandemic also reinforced inequities experienced by people with histories of incarceration. For example, researchers have found that White incarcerated people benefited most from “the largest, most rapid . . . decrease in prison population in US history” that occurred early in the COVID-19 pandemic, in part because of disparities in average sentence length by race.58Brennan Klein et al., COVID-19 Amplified Racial Disparities in the US Criminal Legal System, 617 Nature 344, 344, 348–49 (2023).
This finding aligns with the more general idea that the COVID-19 pandemic deepened preexisting vulnerabilities among PWD in institutional settings (p. 179).

B. Housing

Crossley critiques how the unavailability of affordable, accessible, and inclusive housing affects the health of Black people and PWD (pp. 159–61). Segregation, part and parcel of “the legacy of historically racist restrictive covenants, discriminatory zoning, mortgage discrimination, and redlining” (p. 156), is a well-documented driver of health inequities experienced by Black people (pp. 157–58). Furthermore, despite the deinstitutionalization movement initiated in the 1950s that shifted the focus of behavioral health care from inpatient to outpatient settings (p. 157), many PWD have become de facto excluded from the community at large: “[S]ome neighborhoods become identified as locations of congregate housing for people with cognitive or psychiatric disabilities” (p. 158).

For those with greatest vulnerability, like PWD and Black people, housing determinants are also shaped by policing and criminal law enforcement. In his ethnography of Skid Row in Los Angeles, California, Forrest Stuart finds that law enforcement officials leverage “the coercive power of the criminal legal system in an explicit effort to correct the attitudes, behaviors, and lifestyle choices” of individuals in the throes of homelessness.59 Forrest Stuart, Down, Out, and Under Arrest: Policing and Everyday Life in Skid Row 39 (2016).
This exercise of power has worsened health outcomes. For example, recent research reveals how the continual coercive displacement of unhoused individuals who inject drugs increases the risk of drug overdose and bacterial infection mortality and decreases life expectancy.60See, e.g., Joshua A. Barocas et al., Population-Level Health Effects of Involuntary Displacement of People Experiencing Unsheltered Homelessness Who Inject Drugs in US Cities, 329 JAMA 1478 (2023).
That research also finds that these efforts could be associated with one-quarter of deaths among unhoused individuals who inject drugs by 2028.61Id. at 1484.

C. Education

The educational system is another site where PWD and Black people are disproportionately at risk of health-related harm. One reason relates to “[s]chools’ use of extreme and exclusionary discipline”: “[c]hildren who are Black or disabled (or both) disproportionately face exclusion when schools rely on excessive disciplinary measures or place ‘difficult’ students in ‘alternative’ schools” (p. 165). This problem heightens the risk that youth will be subjected to law enforcement scrutiny. For example, one report found that Black students and those with “educational disabilities” who are removed from the classroom or disciplined by other means face a higher likelihood of incarceration.62See Council State Gov’ts Just. Ctr. & Pub. Pol’y Rsch. Inst., Breaking Schools’ Rules: A Statewide Study on How School Discipline Relates to Students’ Success and Juvenile Justice Involvement x, xii (2011); see also U.S. Comm’n on C.R., Beyond Suspensions: Examining School Discipline Policies and Connections to the School-to-Prison Pipeline for Students of Color with Disabilities (2019), https://www.usccr.gov/pubs/2019/07-23-Beyond-Suspensions.pdf [perma.cc/V7LS-FJPN].

While Embodied Injustice refers to disciplinary measures, Crossley does not explicitly connect the education system with criminal law enforcement. Yet the education system is often the first encounter with the criminal legal system for marginalized groups.63See generally Amanda Merkwae, Note, Schooling the Police: Race, Disability, and the Conduct of School Resource Officers, 21 Mich. J. Race & L. 147 (2015).
Although law enforcement presence in schools was rare during the first half of the twentieth century, between 20,000 and 30,000 officers work full time in these settings today.64See Barbara A. Fedders, The End of School Policing, 109 Calif. L. Rev. 1443, 1445 (2021) (citing Shabnam Javdani, Policing Education: An Empirical Review of the Challenges and Impact of the Work of School Police Officers, 63 Am. J. Cmty. Psych. 253, 253 (2019)).
Research also shows that law enforcement officers are more common in schools with large numbers of Black students, and that their presence disproportionally affects students with disabilities.65Id. at 1488–89.
Consequently, members of these groups are arrested at school more often than their peers.66See id. at 1469.
Such findings buttress conceptual accounts of the school-to-prison pipeline that has plagued middle and high school education for decades.67See Christopher A. Mallett, The School-to-Prison Pipeline: A Critical Review of the Punitive Paradigm Shift, 33 Child & Adolescent Soc. Work J. 15, 15 (2016).

IV. Alternative Emergency Response Programs

Embodied Injustice emphasizes that the health-related harms that Black people and PWD experience arise from socially constructed phenomena rather than innate, biological deficiencies. Crossley calls for intersectional grassroots coalitions and movement building to address these harms. Preliminary qualitative research on Alternative Responses—which localities across the country created in response to mass protest demands following George Floyd’s murder—illustrates the potential of such movement building.68This still-preliminary qualitative research so far has come primarily in the form of semistructured interviews, participant ethnographic observations, and documentary evidence. Although we lean on documentary evidence for purposes of this Review, we point to other forms of data when appropriate. All participant names have been anonymized for confidentiality.
More particularly, by responding to cross-coalitional demands for health-affirming, non-police public safety responses, Alternative Responses not only have the potential to decrease criminal legal involvement among PWD and Black people but they can also attend to the very same intermediate determinants of health that Embodied Injustice emphasizes.

Intersectional Grassroots Activism. Alternative Responses represent a salient case study of Embodied Injustice’s vision for intersectional health justice—particularly, its call to center alliances between and across social movements (pp. 238–40). Consider the experience of Oakland, California, as an illustration. Decades of activism preceded the city’s eventual creation of the Mobile Assistance Community Responders of Oakland (MACRO).69See generally The Mobile Assistance Community Responders of Oakland (MACRO) Program, City of Oakland [hereinafter City of Oakland], https://www.oaklandca.gov/projects/macro-mobile-assistance-community-responders-of-oakland [perma.cc/XKQ9-KG89].
As explained below, this movement has been composed by diverse racial and disability justice organizations. Although these organizations have had platforms that are distinct in many respects, they have shared the commitment to building sustainable and dignity-affirming public health and safety systems for historically marginalized communities.

Oakland’s long history of racial justice activism is well documented, notably as the birthplace of the Black Panther Party (BPP).70E.g., K. Sabeel Rahman & Jocelyn Simonson, The Institutional Design of Community Control, 108 Calif. L. Rev. 679, 708 (2020); Sami Schalk, Black Disability Politics 24 (2022).
In some circles, the BPP may be known for its antistate activism, which, as Sami Schalk describes, has ushered images in the public’s mind of “Black men wear­ing black berets and carrying guns.”71 Schalk, supra note 70, at 24.
But this imagery overshadows the BPP’s deeply-held commitment to realizing the right to health and health care. The BPP’s “vision hewed closely to the fundamentally radical idea that achieving health for all demands a more just and equitable world.”72Mary T. Bassett, Beyond Berets: The Black Panthers as Health Activists, 106 Am. J. Pub. Health 1741, 1741 (2016); see Suzanne Cope, Power Hungry: Women of the Black Panther Party and Freedom Summer and Their Fight to Feed a Movement 163–65, 220– 22 (Lawrence Hill Books ed. 2022) (describing the importance of Black women’s leadership and involvement in driving public health-related program initiatives for the BPP).
Today, organizations such as the Anti-Police Terror Project (APTP), Critical Resistance, Neighbors for Racial Justice, and Root & Rebound have carried forward this vision.73See About APTP, APTP (2022), https://www.antipoliceterrorproject.org/about-aptp [perma.cc/5A7L-DS6A]; CR Oakland, Critical Resistance (2023), https://criticalresistance.org/our-chapters/cr-oakland [perma.cc/9QF6-DRHB]; Ways to Engage with N4RJ, Neighbors for Racial Just. (2023), https://www.neighborsforracialjustice.org/engage [perma.cc/G5NC-NP8B]; California Programs & Services, Root & Rebound (2020), https://www.rootandrebound.org/locations/california [perma.cc/F7AS-XPZ9].
These organizations have fought, for example, for disentangling policing from health care, decarcerating prisons and jails, creating pathways to reparations, and supporting formerly incarcerated people.74See APTP, supra note 73; Critical Resistance, supra note 73; Neighbors for Racial Just., supra note 73; Root & Rebound, supra note 73.

Precedent-creating disability justice activism has also occurred in the East Bay. The Center for Independent Living (CIL) in Berkeley, California, has played a leading role in the fight for the right of PWD to live in the community.75See Judith Heumann with Kristen Joiner, Being Heumann: An Unrepentant Memoir of a Disability Rights Activist 69–157 (2020).
It famously helped to orchestrate the most important protest of the American disability rights movement. The protest involved a twenty-six-day sit-in at the San Francisco office of the United States Department of Health, Education, and Welfare.76Id. at 85–147.
The protesters demanded that then-Secretary Joseph Califano sign the regulations that would implement § 504 of the Rehabilitation Act of 1973, which prohibited all disability-based discrimination by recipients of federal funds.77Id. at 86, 95; see generally 29 U.S.C. § 794(a). Sami Schalk discusses in useful detail BPP involvement during the 504 sit-in. Schalk, supra note 70, at 23–47. Notably, Schalk reviews content from the Black Panther, the BPP’s weekly newspaper, from 1967 to 1980, and finds that the 504 sit-in “is the most significant moment of coalition and solidarity with disabled people in the entirety of the paper’s publication.” Id. at 23–24.
The CIL remains engaged in disability justice advocacy, joined by organizations like the Homeless Action Center and the Homeless Advocacy Working Group.78Programs, Ctr. for Indep. Living, Inc., https://www.centerforindependentliving.org/programs [perma.cc/78GM-J9FD]; Programs, Homeless Action Ctr., https://homelessactioncenter.org/programs [perma.cc/5N8Z-KDD8]; Five-Point Program to Ameliorate Homelessness in Oakland During the 2023–24 Biennial Period, Homeless Advoc. Working Grp. (Feb. 2023), https://www.shelteroak.org/hawg.html [perma.cc/3PJX-MEVD].
These organizations work to ensure that PWD, many of whom are unhoused in and around Oakland, are connected to public benefit programs, receive legal representation, and enjoy safe and humane living conditions.79See Ctr. for Indep. Living, Inc., supra note 78; Homeless Action Ctr., supra note 78; Homeless Advoc. Working Grp., supra note 78.

These strands of activism coalesced behind Oakland’s decision to create MACRO. City records and media reports indicate that in 2019, the city enlisted a community-based organization called Urban Strategies Council to determine the feasibility of an Alternative Response program.80See City of Oakland, supra note 69 (“With the support of the Urban Strategies Council (USC), several stakeholder groups and community members, including people in Oakland’s most impacted communities, engaged in nine months of analysis to determine the best pathway forward. This work resulted in a recommendation for a pilot program in two geographic areas of Oakland.”); Haaziq Madyun, Oakland Considers Policing Model Involving Civilians Responding to Specific 911 Calls, KRON4 (June 8, 2020, 5:52 PM), https://www.kron4.com/news/bay-area/oakland-considers-policing-model-involving-civilians-responding-to-specific-911-calls [perma.cc/WL3D-ZXA7].
The report emanating from that work integrated input and feedback from a cross section of advocacy-based community organizations in Oakland—including APTP, the CIL, and many others working at the nexus of racial and disability justice.81See Urb. Strategies Council, Report on Feasibility and Implementation of a Pilot of Mobile Assistance Community Responders of Oakland (MACRO) (2020), https://www.us-amsa.org/wp-content/uploads/2021/08/Copy-of-jj-USC_MACRO-Report_062220.pdf [perma.cc/E3GW-SSEZ].
After nine months of engagement with these organizations, the Urban Strategies Council recommended a program that would replace police in “mental health and non-criminal community crises.”82Id. at 1–3.

The Urban Strategies Council’s findings build on years of mobilization efforts to displace police in behavioral health crises. For example, the Oakland Power Projects, inspired by Critical Resistance research in Oakland in 2013, has offered residents trainings on how to avoid unnecessary contact with police during health-related crises.83Oakland Power Projects, Critical Resistance, https://criticalresistance.org/oakland-power-projects [perma.cc/42YR-GP9V]; The Oakland Power Projects, Critical Resistance, http://criticalresistance.org/wp-content/uploads/2015/03/TheOakPowerProj_rept_target1_v3WEB.pdf [perma.cc/S7R6-2SHV].
These trainings emerge from recognition that “policing fails to meet people’s needs, and puts people in danger of arrest, imprisonment, and/or even death.”84Id.
Other organizations, namely the Anti-Police Terror Project through its MH First initiative, have created similar, community-led initiatives to decouple the provision of health care from law enforcement intervention.85See, e.g., M.H. First, APTP (2022), https://www.antipoliceterrorproject.org/mental-health-first [perma.cc/2A29-7KRA] (“MH First, a project of Anti Police-Terror Project, is a cutting-edge new model for non-police response to mental health crisis. The goal of MH First is to respond to mental health crises including, but not limited to, psychiatric emergencies, substance use support, and domestic violence safety planning.”).
These community-led programs have worked to offer concrete and achievable “alternatives to calling the police while simultaneously questioning the logic of police involvement in medical crises in the first place.”86See, e.g., Amna A. Akbar, An Abolitionist Horizon for (Police) Reform, 108 Calif. L. Rev. 1781, 1835–37 (2020).
Given the myriad of contexts in which criminal law enforcement shapes health care and social systems—including housing and education—limiting unnecessary police involvement is important to improve health and wellbeing. Similar initiatives likely exist in other localities that have decided to create Alternative Responses, but a comprehensive, systematic accounting of these efforts would go beyond the boundaries of this Review.

Curbing Criminal Law Enforcement. Alternative Responses have had success curbing police involvement in high-frequency, low-risk emergency calls involving people who are experiencing health-related difficulties, including behavioral health distress. This finding can be explained by the following institutional arrangement: A principle of emergency public safety services commands that if a situation presents a risk of danger or violence, then police must respond; Alternative Responses are ruled out.87This idea was emphasized by an emergency communications official. See Interview with Victor Thompson (Jan. 24, 2023) (emphasizing that when there is a risk of danger police are contacted and sent in, sometimes with Alternative Response team members).
To assess this risk, 9-1-1 communications personnel screen for issues like the presence of weapons, injuries, and threats of harm to self or others.88See id.
Typically, they will err on the side of caution and call on police versus Alternative Responses to make a public safety response.89Guidance from the program in Madison, Wisconsin, makes this point clear: “CARES is not designed to respond to violent situations or life-threatening emergencies.” Dane County PSC/CARES Process Overview (on file with lead author).

Outside of situations that are considered dangerous, however, Alternative Responses have rather broad latitude to intervene. That latitude can apply to an array of incidents that are usually subject to law enforcement intervention, such as low-level controlled substance use, public disturbance, trespassing, and panhandling.90See, e.g., id.; Mobile Assistance Community Responders of Oakland (MACRO) Services (on file with lead author).
In most cases, these behaviors pose no threat to life and limb. This process is paradigmatic in how Alternative Responses have the potential to protect PWD and Black people from the inequitable health risks associated with criminal law enforcement.91Evidence from other research supports this finding. Most notably, researchers found that the Alternative Responses in Denver, Colorado, called Support Team Assistance Response (STAR), have led to a reduction in reported “less serious offenses” (e.g., public disorder, trespassing, resisting arrest). This decline can be attributed to, among other things, the personnel’s reluctance to report community members to the police. See generally Thomas S. Dee & Jaymes Pyne, A Community Response Approach to Mental Health and Substance Abuse Crises Reduced Crime, Sci. Advances, June 2022, at 1.

Addressing Intermediary Determinants of Health. Alternative Responses can also address the very same intermediary determinants of health that Embodied Injustice focuses on. For instance, Alternative Responses respond to situations that involve unstably housed or unhoused individuals.92See, e.g., City of Oakland, supra note 69 (“MACRO teams respond to calls about homelessness . . . .”); Madison Fire Dep’t, Journey Mental Health Ctr. & Pub. Health Madison & Dane Cnty., Madison CARES: A New Approach to Behavioral Health 18 (2022), https://publichealthmdc.com/documents/cares_annual_report_2022.pdf [perma.cc/ZL98-4QKE] (describing CARES’s experience supporting people experiencing homelessness).
Such situations can range in severity, from somebody needing a fresh set of clothes to somebody suffering an overdose who immediately requires the administration of Narcan.93In fact, knowing how to administer Narcan is part of the required training for Alternative Responses personnel. See, e.g., LEAP Dayton Community Responder Report 13 (2021) (describing a policy under which all mediation responders in the city of Dayton receive Narcan training).
Depending on the nature of these situations, Alternative Responses often have the capacity to assess housing-related needs and provide support. If people do not have a place to stay, Alternative Responses can bring them to a shelter, where they may be able to spend the night.94According to data published by MACRO, at least eighteen percent of referrals to community-based services during the program’s first year in operation were to St. Vincent de Paul of Alameda County, which is the largest shelter in Oakland. See City of Oakland, MACRO 1 Year Impact Report 17 (2023), https://cao-94612.s3.amazonaws.com/documents/1-Year-MACRO-Report.pdf [perma.cc/6D3L-UA3Q] (showing that 304 out of the 1,724 referrals were made to St. Vincent de Paul); St. Vincent de Paul Alameda Cnty., Who We Are, https://www.svdp-alameda.org/who-we-are1.html [perma.cc/K4KX-ZY5Z]. Because shelters can be hostile or otherwise unwelcoming environments for people, however, they are typically considered means of last resort for Alternative Response personnel who wish to connect service users with housing providers in the community. See, e.g., Chris Herring, Complaint-Oriented “Services”: Shelters as Tools for Criminalizing Homelessness, 693 ANNALS Am. Acad. Pol. & Soc. Sci. 264 (2021).
They can also contact housing support providers who can create onramps for short- and long-term housing.95See, e.g., City of Oakland, supra note 69 (explaining that during its first year in operation, MACRO referred the most calls to La Familia); see also What We Do, La Familia, https://livelafamilia.org/services [perma.cc/T48Y-KJ6Q] (highlighting that La Familia provides housing services in the Bay Area, among other things).
This focus on housing, although highly and inevitably contingent on resources that are available in the community, exemplifies the utility of Alternative Responses beyond their criminal diversionary function.

Evidence also suggests that Alternative Responses can help address crisis situations involving youth. Although Alternative Response interventions are generally confined to public settings, their scope can extend into settings like schools, where they can provide resources to students and personnel.96Interview with Bernard Perry (May 25, 2023) (describing a situation where an Alternative Response de-escalated an incident involving a middle school student in behavioral health distress).
This scope of response serves a dual purpose. It addresses the needs of educators and other staff who lack the training to address certain crisis situations. Additionally, it has the potential to mitigate, and even prevent, youth encounters with police. Alternative Responses’ work with youth also extends to various community settings, such as group homes and libraries.97See Tracey Frisch & Gregory Kochansky, Advancing Access to Justice Through Alternative Dispute Resolution: AAA-IDCR Foundation Grantees in Focus, Disp. Resol. Mag., Sept. 2023, at 7; e.g., Brian Krans, Oakland Librarians Feel ‘More Unsafe’ Than Ever, Internal Report Says, Oaklandside (Sept. 12, 2023, 9:00 AM), https://oaklandside.org/2023/09/12/oakland-public-libraries-security-safety-report [perma.cc/5ZYF-762X].
The widened purview stands as a potentially promising strategy to address the disproportionate criminalization of youth with disabilities and Black youth.

Alternative Responses can help to tackle intermediary determinants of health beyond housing and education as well. Many have emergency medical technicians or paramedics on staff, meaning they can conduct on-the-spot health care assessments.98To illustrate, the program in Oakland has emergency medical technicians, while the program in Madison has paramedics. Compare No Further Delays on Launching MACRO—Oakland’s Civilian Crisis Responders Program & Calling to Keep Planned Community Advisory Board, City of Oakland (Sep. 13, 2021, 3:28 PM), https://www.oaklandca.gov/news/2021/no-further-delays-on-launching-macro-oaklands-civilian-crisis-responders-program-calling-to-keep-planned-community-advisory-board [perma.cc/NJT2-XGNJ] (explaining that emergency medical technicians are part of the response teams), with Community Alternative Response Emergency Services (CARES), City of Madison, https://www.cityofmadison.com/fire/emergency-medical-services/community-alternative-response-emergency-services-cares [perma.cc/WH65-9D6G] (“CARES consists of two response teams comprised of one Madison Fire Department community paramedic and one Journey Mental Health Center crisis worker.”).
These assessments can be helpful for understanding and following up on people’s health-related needs.99Interview with James Smith (June 21, 2023) (describing the importance of following up on people’s experiences with community-based resource providers).
Alternative Responses also have a record of creating connections with community-based health providers and services, such as food banks and other nutrition assistance programs, clothing services, and hygiene service providers.100To this effect, MACRO staff have created a document that spans over thirty pages listing resources in the community that they’ve used for service provision referrals. Types of services include housing, shelter, food and groceries, clothes, hygiene, job resources, legal resources, transportation resources, health and behavioral health care, and harm reduction. MACRO Resource List (April 2023) (on file with lead author).
These responses illustrate how Alternative Responses have the potential to meet the health-related needs of marginalized populations, including PWD and Black people, without needing to rely on other public safety agencies.

Conclusion

Embodied Injustice is a timely intervention that laudably places disability and race at the center of health justice discourse. Its analysis of the disability-race nexus is sharp and thorough, and it offers critically important reflections on why centering the experiences of PWD and Black people is necessary to ensure a healthier, more just society. We recommend it to any scholar, policymaker, or practitioner who hopes to acquire a foundational and up-to-date understanding of the complicated and fraught relationship between disability, race, and health.

We have also emphasized throughout this Review the ubiquitous and often pernicious role that criminal law plays in American health care and public health systems, as well as its disproportionate impacts on PWD and Black people. Criminal law interacts deeply and intimately with experiences of motherhood and pregnancy, public health insurance systems, and the patient-physician relationship. Its influence also extends beyond the health care system, pervading other areas of life that shape health, such as housing and education.

In that light, we agree with Crossley that achieving intersectional health justice goes beyond improving health outcomes and addressing intermediary determinants of health that disproportionately affect PWD and Black people. Such goals, although crucial, would alone yield a framework for law, policy, and practice that is too narrow. Using Alternative Responses as an illustrative case study, we have shown that intersectional health justice requires bold democratic action that flourishes from the bottom up. This work can help to disentangle the public’s health from criminal law enforcement and to realign medicine and social support systems toward actual care.


*      Incoming Associate Professor of Law, University of California College of the Law, San Francisco; Research Fellow, Center for Public Health Law Research, Temple University Beasley School of Law; Annual Fellow, Harvard Law School Project on Disability, Harvard Law School; Initiative Fellow, Edmond & Lily Safra Center for Ethics, Harvard University; Ph.D. Candidate in Health Policy, Harvard University. Mr. Barsky acknowledges support from the Robert Wood Johnson Foundation Evidence for Action Program.

 **      Martha Lubin Karsh and Bruce A. Karsh Bicentennial Professor of Law, University of Virginia School of Law.

†      Executive Director, Harvard Law School Project on Disability, Harvard Law School; Visiting Professor of Law, Harvard Law School.